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  1. Catch it on news last night. This rare diseases fund is a very good initiative started by MOH, to help families cope with high medical and treatment cost for rare diseases. One of the family interviewed face a monthly medical bill of up to $24K, which is beyond imagination for even a typical middle income family. I hope more can be aware of this RDF, and help to spread the news, so that families in need can benefit from the scheme. It would be good if we could contribute to the fund to help the needy. More information on the RDF is available on www.kkh.com.sg/rarediseasefund New hope for patients with rare diseases with the launching of a new fund https://www.straitstimes.com/singapore/new-hope-for-patients-with-rare-diseases-with-the-launching-of-a-new-fund SINGAPORE - Singaporeans with three forms of rare diseases now have access to financial aid to help with medical expenses which can run into thousands of dollars each month. Launched on Tuesday (July 2) by the Ministry of Health (MOH) and SingHealth Fund, the Rare Disease Fund (RDF) will, for a start, fund five medicines used to treat the three conditions - primary bile acid synthesis disorder, Gaucher disease and Hyperphenylalaninaemia due to tetrahydrobiopterin (BH4) deficiency. New charity fund to provide financial support for Singaporeans with rare diseases https://www.channelnewsasia.com/news/singapore/charity-fund-health-rare-disease-treatment-cost-11682554 SINGAPORE: A new charity fund has been set up to help Singaporeans with rare diseases who cannot afford treatment costs. Jointly established by the Ministry of Health (MOH) and the SingHealth Fund, the Rare Disease Fund will combine community donations and Government-matched contributions to financially support Singapore citizens with specific rare diseases, MOH announced in a press release on Tuesday (Jul 2). Singaporeans with 3 rare diseases will get funding help for treatment https://www.tnp.sg/news/singapore/singaporeans-3-rare-diseases-will-get-funding-help-treatment Launched yesterday by the Ministry of Health (MOH) and SingHealth Fund, the Rare Disease Fund (RDF) will, for a start, support the use of five medicines to treat the three conditions - Primary bile acid synthesis disorder, Gaucher disease and hyperphenylalaninaemia due to tetrahydrobiopterin (BH4) deficiency. The hope is that over time, more rare diseases and medications will be added to the list, an MOH statement said yesterday.
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