Little_prince Supersonic June 18, 2015 Share June 18, 2015 (edited) Apologies in advance if this is not allowed This is damm heart breaking My wife and I also have a young daughter. We just donated too. just want to share with you guys https://life.indiegogo.com/fundraisers/save-baby-yujia-help-her-eat-by-her-mouth Baby Yujia is born with long gap esophageal atresia and multiple anomalies. It is a rare birth defect that unfortunately happens to her. She is not able to eat anything since her birth til now because her esophagus is not connected to her stomach. This requires definite surgery to join them together. It may sound simple but unfortunately it is not as easy as it seemed. She has been staying in hospital pretty much most of her life and recently just discharged but this is not the end of the story. To help you understand more about her condition and why we need your donation, we have made a video that self explains our current situation. Below is the video link: Thank you for spending time reading and watching this. Please help to share :) We really appreciate your kindness and hope that you can help us share our story and reach our goal. Your kind donation will help Baby Yujia to finally be able to eat by her mouth. What We Need The Surgery medical bills is estimated at 1.3million USD. As we are not US citizen, we are not covered by any insurance should we go to Boston Children's Hospital for treatment. We hope to raise enough funds to her our baby girl to get her esophagus fixed and we really hope to see her eat by her mouth soon. Thank you very much! Edited June 18, 2015 by Little_prince ↡ Advertisement 11 Link to post Share on other sites More sharing options...
LoverofCar 6th Gear June 18, 2015 Share June 18, 2015 (edited) I knew about this about a week ago. Had made a small donation to the crowd funding. Heart to heart....and as parent myself. I do understand the parent's wish to send their baby oversea so that she receive the best treatment or should I say...the only treatment and hope for their baby to recover fully from the condition.... Hope members here chip in. No sum is too small for help. Edited June 18, 2015 by LoverofCar 3 Link to post Share on other sites More sharing options...
Atonchia Supersonic June 18, 2015 Share June 18, 2015 (edited) Apologies in advance if this is not allowed This is damm heart breaking My wife and I also have a young daughter. We just donated too. just want to share with you guys https://life.indiegogo.com/fundraisers/save-baby-yujia-help-her-eat-by-her-mouth Baby Yujia is born with long gap esophageal atresia and multiple anomalies. It is a rare birth defect that unfortunately happens to her. She is not able to eat anything since her birth til now because her esophagus is not connected to her stomach. This requires definite surgery to join them together. It may sound simple but unfortunately it is not as easy as it seemed. She has been staying in hospital pretty much most of her life and recently just discharged but this is not the end of the story. To help you understand more about her condition and why we need your donation, we have made a video that self explains our current situation. Below is the video link: Thank you for spending time reading and watching this. Please help to share :) We really appreciate your kindness and hope that you can help us share our story and reach our goal. Your kind donation will help Baby Yujia to finally be able to eat by her mouth. What We Need The Surgery medical bills is estimated at 1.3million USD. As we are not US citizen, we are not covered by any insurance should we go to Boston Children's Hospital for treatment. We hope to raise enough funds to her our baby girl to get her esophagus fixed and we really hope to see her eat by her mouth soon. Thank you very much! Saw this on FB posting too. It also came up on straits time too. Then saw some commented that why not have the surgery in Singapore. I guess those who made those comments aren't parent yet. This type of surgery should be very high risk and if the US hospital is the best, then by all means go for the best, let the crowdfunding do the job. It could likely be an advice given the baby Yujia local paediatrician to seek such surgery there. Edited June 18, 2015 by Atonchia 2 Link to post Share on other sites More sharing options...
Pocus Turbocharged June 18, 2015 Share June 18, 2015 Saw this on FB posting too. It also came up on straits time too. Then saw some commented that why not have the surgery in Singapore. I guess those who made those comments aren't parent yet. Not only are they not parents, they are blind never read carefully. Yujie already had a few surgeries at KKH to correct the defect but non was fully successful and had complications. I think it's the best the doctors in SG can do liao. As for overseas, it's private and foreign hence the cost is astronomical! Overseas may not be 1successful but it's a gamble they had to take. At this point, there's no turning back, no giving up, you just go as deep as the rabbit hole takes you. I salute the parents of those involved, hope they say strong all the way... 2 Link to post Share on other sites More sharing options...
Itarc Neutral Newbie June 18, 2015 Share June 18, 2015 Saw this on FB posting too. It also came up on straits time too. Then saw some commented that why not have the surgery in Singapore. I guess those who made those comments aren't parent yet. This type of surgery should be very high risk and if the US hospital is the best, then by all means go for the best, let the crowdfunding do the job. It could likely be an advice given the baby Yujia local paediatrician to seek such surgery there. The video explains a few things, i will try to summaries some of the points: 1. Yujia have other health issues, but this surgery address her biggest problem and lessen her dependency on medicine and equipment. 2. She cannot eat on her own, and there are tubes inside her for feeding and draining other stuff out. Because of this she is dependent on medication for the infection. 3. This will not stop until she has a successful surgery. 4. She already had a few surgeries in singapore to correct her problem. However her case is very complex and the doctors here cannot do anything more to help her. Boston is her only option right now. This is based on my own understanding after watching her video, i will suggest to watch it if you are interested to know more. 1 Link to post Share on other sites More sharing options...
Vid Hypersonic June 18, 2015 Share June 18, 2015 Donated last week. Poor baby had to undergo so many op at such a young age. Singapore has no answer for her rare condition so had to go US. 1 Link to post Share on other sites More sharing options...
Lala81 Hypersonic June 18, 2015 Share June 18, 2015 Someone in EDMW says his relative at KK confirms that the story is genuine. 1 Link to post Share on other sites More sharing options...
Atonchia Supersonic June 18, 2015 Share June 18, 2015 The video explains a few things, i will try to summaries some of the points: 1. Yujia have other health issues, but this surgery address her biggest problem and lessen her dependency on medicine and equipment. 2. She cannot eat on her own, and there are tubes inside her for feeding and draining other stuff out. Because of this she is dependent on medication for the infection. 3. This will not stop until she has a successful surgery. 4. She already had a few surgeries in singapore to correct her problem. However her case is very complex and the doctors here cannot do anything more to help her. Boston is her only option right now. This is based on my own understanding after watching her video, i will suggest to watch it if you are interested to know more. I've already read of her condition. Just cannot understand why people can be so causal on their comments(on straits time forum), some said not going to Boston would not require millions of dollars. As my kid is only slightly older than Yujia, going on a short 4hrs flight was already quite a task. So bringing her to Boston is almost a full day flight not including transfer, and with her medical condition, it is definitely not a simple economy seat. Thus it's definitely the only choice of hope for her to seek treatment there. Let's hope the crowd funding can reached the targeted amount soon. Will be making my small contribution too. 1 Link to post Share on other sites More sharing options...
Shull Turbocharged June 18, 2015 Share June 18, 2015 (edited) This is the ST Article. Mum in crowd-funding drive to raise $1.7m for baby's operation THE sum of US$1.3 million (S$1.7 million) is an astounding amount to be asking strangers for. But the kindness of strangers is exactly what Madam Jamie Chua is banking on to pave the way for her toddler to have the surgery she needs. At just 21 months, Xie Yujia has suffered multiple operations, a collapsed lung, a seizure and a detached retina. Her biggest problem is a congenital defect - her oesophagus, or food pipe, is not connected to her stomach. Madam Chua, 30, has started a crowd-funding effort on Indiegogo to raise the necessary funds for Yujia to have reconstructive surgery at the Boston Children's Hospital in the United States, which specialises in treating such defects. "I was told before delivery that the baby might have a block in her food pipe, as she couldn't swallow amniotic fluid," recalled the housewife. Tests revealed the far more serious problem of oesophageal atresia, which happens in about one out of 2,500 births. A day after she was born, she was wheeled into the operating room for surgery, but her oesophagus was too far from the stomach to be joined to it. For the next five months, Yujia was fed through a tube to her stomach and needed another down her throat to remove the saliva which might choke her. She had corrective surgery in February last year and went home a month later for the first time, but complications, such as infections, continued to dog her. That April, after a second procedure to widen her oesophagus, it ruptured and the gastric juice that leaked into her lungs caused her left lung to collapse. Back into hospital she went. Finally, in February, she was well enough to go home with her mum and dad, Mr Xie Wen Long, 40, a self-employed event organiser. Madam Chua said the dreaded process of sticking a tube down Yujia's throat every few hours is the main reason she would like her daughter to have reconstructive surgery. "Feeding her through a tube to her stomach is okay, but I can't see her go through the suction process," she said. When she heard the amount needed for the surgery in Boston, her heart dropped as she had thought it would cost the same amount as the surgery in Singapore, which was about $300,000. Her Indiegogo campaign had received US$35,200 as of last night. http://www.straitstimes.com/news/singapore/more-singapore-stories/story/mum-crowd-funding-drive-raise-17m-babys-operation-201506 Another alternative crowdfunding page is at http://giveasia.org/donate/new/557bcb0f8bdfee4718001a4d/0 This is a local Singapore owned website Edited June 18, 2015 by Shull 2 Link to post Share on other sites More sharing options...
Leinad8919 Turbocharged June 18, 2015 Share June 18, 2015 (edited) Dear fellow bros....lovers or haters; allow me to play the devil's advocate & go straight to the point. USD1.3M to try to save a toddler full of other medical problems......If the operation is done & successful, will the little girl be able to live normally & will the parents able to cope taking care of her needs which is both physical & mentally straining.....how about future medical expenses? Looking at the video, both the parents are very young....they can still be someone's father & mother....no doubt it is a little life, the love & bond is priceless....but when you have to let go...you let it go. USD1.3M can save a lot lives elsewhere in the world. These are also someone's children. Their parents loved them no less than those in developed countries.... Edited June 18, 2015 by Leinad8919 3 Link to post Share on other sites More sharing options...
Jman888 Moderator June 19, 2015 Share June 19, 2015 ironically saw this on the same page ... Link to post Share on other sites More sharing options...
Vid Hypersonic June 19, 2015 Share June 19, 2015 ironically saw this on the same page ... What will this money be used for? Scam? SG is rich enough. Link to post Share on other sites More sharing options...
CarPark8 3rd Gear June 19, 2015 Share June 19, 2015 I would like to share this apparent true story that I found in my email sometime ago. Arthur Ashe, the legendary Wimbledon player was dying of AIDS which he got due to infected blood he received during a heart surgery in 1983.From the world over, he received letters from his fan, one of them conveyed: "Why does God have to select you for such a bad disease?".To this Arthur Ashe replied: “The world over - 50,000,000 children start playing tennis, 5,000,000 learn to play tennis, 500,000 learn professional tennis, 50,000 come to the circuit, 5000 reach the grand slam, 50 reach the Wimbledon, 4 to semi-finals, 2 to finals. When I was the one holding the cup, I never asked God "Why me?". And today in pain, I should not be asking GOD "why me?". 3 Link to post Share on other sites More sharing options...
Cheesey74 6th Gear November 1, 2015 Share November 1, 2015 Just know of this, upz for awareness. ↡ Advertisement Link to post Share on other sites More sharing options...
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